No Regrets

I’m reeling over the diagnosis of a family member… something we suspected but hoped was not so. Dementia steals life away so quickly and completely.Hugh, Kay, Henry, Rebecca, Nova, Dan, Bailey, Susan, Clark, Sally

Today was the second opinion and next week will be more tests to determine where we are in the process and how quickly we need to move on all of the many complex issues of safety, finances, legal, treatment, residental and other matters.

No one talks much about feelings through all of this, and in this instance, feelings are already beginning to be obscured by the disease and manifested as fear, insecurity, paranoia, anger… all of the things you might imagine if the world you knew suddenly seemed unreal and unfamiliar and everything was lost and out of place. Alice in Wonderland on LSD. Horrifying.

On the way home we had some tender conversations as she spontaneously reflected on her life, her regrets, wishing that she’d lived with more kindess, compassion, been less rigid and judgemental, more helpful and thoughtful. I was touched by her sudden insight and clarity, knowing that on some level she understood the diagnosis. And, I felt oh so grateful for our now rare, tender, human sisterly connection in the midst of the confusing conflagration in her brain.

As she named people she felt that she’d hurt, I listened and asked if she could forgive herself, and ask for forgiveness. ( I’m learning to wait in the quiet)

Silence.

I took the risk of being real, and named some times she’d deeply hurt me and my family, giving her the opportunity to own her choices, and to apologize if she chose.

After a time, she quietly acknowledged her actions, and said ‘I wish I’d done better. I’m sorry’. and she wept.

That was more than I needed and I hope and pray that was what she truely needed… to hear herself be real, acknowledge her actions, and accept not only my forgiveness, but her own forgiveness, and yes.. her God’s forgiveness. Grace. Karma changed.

I asked if she remembered the good things she’d done, the children she’d taught, saved, served, the audiences she’s entertained… but she was quiet. I’m hoping she’ll remember
those times as well, to balance the regrets.

On that hour long drive  over the Cape Fear River Bridge, through two traffic accidents with back to back vehicles in one lane only, I thought more about regrets, and realized that as much as I’ve wanted to travel, to learn, to dance the Gelede Spectacles in Western Africa, explore Egypt and the Nile, visit Paris, Greece, Chartre Cathedral, see the Great Wall of China, the ashrams of India and so many other places of wonder, adventure, enlightenment, I have no regrets.

I’ve lived a strange, busy, interesting, wonderful, painful, joyous life. At times I felt I might die of heartbreak. But I lived, and chose to love, learn, serve and  let myself feel again.

My life has been one of service which many haven’t understood, and has given me great joy, purpose and a sense of fulfillment. I’ve been derisively called a caretaker, when I supported my dying spouse, when I helped an elderly neighbor and others. But it was the right and loving thing for me to do.

For seventeen years, I travelled two hours each way to rehearse after work and on weekends, in order to travel and sing evensong and ancient acapella music in old one room wooden churchs in NC as well as ancient stone cathedrals in England, and  met wonderful, interesting and ordinary people.

.Sussi singing with Schola Cantorum, Diocese of East Carolina, Bath NC 2005

Often, I’ve wished that I’d kept a journal of all those I’ve met, whether through singing, facilitating retreats, counselling, listening, providing case management, advocacy, a smile, transportation, serving their child, hosting dinners in my home, or simply believing in someone who didn’t feel valuable. The journal would have been about honoring and  remembering those in my life, and a way to stay in touch with and thank those who meant so much to me.

So many people have passed through my life that I’m humbled at the wealth I  feel from the memory of their presence, even when I don’t remember names. But I was busy and let those days wash by me.

Perhaps thats how it should be.
Perhaps not.

Many have helped and supported me during difficult times and dark nights of the soul when I was questioning my meaning and self worth. Our society often measures worth by money, appearance, and career, yet as I look back, more often than not I’ve felt valued and honored just for being my self. Whatever I am, I’m still learning, and hope I’ll always be learning…. but we don’t know. I’m grateful beyond anything else I can say, for each of you who have been there when I’ve been confused, arrogant, depressed, and disconnected. Thank you.

So, if I have regrets, it’s not that I’ve missed Paris- though I’m pretty nostalgic over that one and would love to honeymoon there, it’s that I’ve missed hugging someone one more time and I have a long, long list. It’s missing a laugh over dinner and a glass of wine with someone I don’t see often enough. It’s wanting to watch another fabulous movie and discuss with a friend. It’s longing to enjoy the sunset with my dear, dear partner and lover. It’s wishing I’d listened more closely to someone who needs my ears, heart and skills. It’s the conversation I wish I’d had when I’ve learned someone is gone.

Thankfully,  those regrets are fairly few…and getting fewer as I’m becoming more open and courageous about those important and sometimes difficult conversations.

If you have anything you’d like to say to me, I’m ready to hear it.

And, if you have anything you’d like to hear me say to you, please ask.

Life is short… we don’t have all of the time we think, want or might wish for.
This is it, Dear Hearts….

Love,

Susan

Marilyns candles Artists Way

About Sussi

Living on the edge of all good things...food, health, art, yoga, friends, wisdom and joy.
This entry was posted in Health and Chronic Wellness. Bookmark the permalink.

5 Responses to No Regrets

  1. Margaret Whichard says:

    I always enjoy your posts and as is often the case can relate. I love the way you struggle with your feelings, express them and come to a place of resolution. So many people never get this far. I watched my mom struggle with Dementia and several other close friends and relatives. It’s a heart breaker and something that no one wants to go through. I want to ask who it is – share by email if you’d like. You’ve survived so much, you’ll get through this too. I look back on my life as well and honestly have very few regrets. I’ve made peace with the thought that maybe it could have been better or easier if I’d made different choices but then look what I’d missed. Same with you. You’ve touched so many lives. Perhaps this was your path. Don’t give up the dream to go to Paris. Sounds like the perfect honeymoon location. Think about you often and look forward to the day when I can spend more time in your part of the woods.

    • Sussi says:

      Margaret, thank you so much for your support and encouragement. Yes.. we’ve both lived full lives- full of interesting, incredible, painful, wonderful people and experiences, and there’s more to come! I’ll message you on FaceBook. We have room here and in Supply, anytime you want to visit! Love you and all of yours…. Susan

  2. wayne says:

    I feel this one, Susan.
    Over the years I missed her deep voiced laughter and her curiosity and sharp discernment, as life paths took us all in different directions. She came into my life at a pivotal time, and I will always be grateful to have shared “good times, good times” with her.
    I’m tempted to regret not getting back to Wilmington to see her before now. I know there is healing in forgiveness and release, and I also know somewhere deep, where we are all one, there’s no “wrong” to forgive.

    Words don’t say how strongly I hold her in my heart-mind, and will hold you all in prayer. Thank you for sharing your heart, here, and on FB.
    ~Wayne

    • Sussi says:

      Wayne, I hear so, so much dear tenderness in your comment. Thank you for that.
      If you ever should want to visit, know that she is mostly cognizant, generally peaceful
      with others, not always with family- but those things are deep. She still enjoys a good meal,
      cheese, a glass of wine, conversation, movies, walks and creature comforts.

      We’ll know more in another month, but for now, as long as someone else is in charge, she’s ok.

      This morning on the drive in, she was analyzing the arts program at Elderhaus where she attends
      three days a week. She was reminiscing about her years as an art therapist for adults and children
      with dual diagnoses in various facilities and day programs around Birmingham.
      Returning to work is something she mentions often so we’ve applied for various programs to provide supports
      so that she can do what she loves- in whatever form that takes, and help with everything else in addition to housing.

      System wheels grind slowly… but I feel that she’ll continue to have quality of life
      for some period of time, and that we’ll also be able to put things in place for her, so that
      we, too, can go on with our lives.

      If you change your mind….. we’re all here.

      -Susan

      • Wayne says:

        So good to know, Susan.
        We share the mission to make a difference with people through the arts, though I never have focused on that, ’til lately. I start facilitating a course in writing for healing, in February, so I’ll find a gap around these activities, and let you and Sally know when I can come to Wilmington. If nothing else, a lunch and/or a beach walk would maybe afford conversation.
        I’ll do my best to make it soon. It’s not so much a change of mind, as a new urgency with this news.
        Of course you remind me that I don’t know what times I have before me, either, especially as I have a mentor and friend in Myrtle Beach who now depends on others for daily care, no longer able to do for himself, physically. My own parents are not far behind in this, either, as my Mom seems to be gradually losing short term memory, herself, while we have lucid conversations, generally.
        With more tenderness than I ever had as a younger man, for sure, thank you for answering my comment at length.
        ~Wayne

Leave a comment